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Stopping Sarcoidosis One Snowflake at a Time

Paul Paradis

paul paradis

To help celebrate the end of another year, this holiday season I am participating in the Foundation for Sarcoidosis Research’s (FSR) efforts towards Stopping Sarcoidosis One Snowflake at a Time. I am joining the movement to help accelerate groundbreaking research and support those impacted by this disease and I need you to join me!

By supporting my fundraising and awareness efforts, you will be investing in the future for those impacted by sarcoidosis. The sarcoidosis community and I greatly appreciate your generosity and support!

I hope you will join me and help achieve our goals by:

1. Making a donation to my fundraising page.

Hi! For the past 8 years, I have been living with sarcoidosis throughout my body. After a lengthy diagnosis, of seven months the locale doctors arrived at an educated diagnosis of neuro, a presence of granulomas on my optic nerve and a touch of a mass in a lung. The doctors, not having much experience with the disease began their treatment course of prednisone, tapering off and remicaide every 8 weeks at the lowest prescribed level of 400mg and a prognosis of probably having to live with this disease for the rest of my life. At this point, I needed to know a whole lot more about this disease and began my search. Almost immediately, I located the Foundation for Sarcoidosis Research’s (FSR) web page, which began my thirst for more information, contact with others like me and my desired to be involved in supporting FSR’s efforts through fundraising and advocacy. As it is a rare disease more work is needed to fund research and raise awareness to help find a cure.

3. Share this page link with your friends and family on social media and invite them to share their #SnowflakeStory as a supporter of someone impacted by sarcoidosis.

Together, we can create a blizzard towards our efforts in Stopping Sarcoidosis One Snowflake at a Time!

Thank you!

Click here for more information on sarcoidosis and the Foundation for Sarcoidosis Research.
Thank you!

Click here for more information on sarcoidosis and the Foundation for Sarcoidosis Research.

paul x
NOV
29

My first direct contact with FSR was my attendance at a patient conference in Hersey, PA, 2015. It was at this conference that I met the wonderful; folks involved with the foundation. Heard explanations of the disease by world-renowned expert doctors and researchers and met other patients like myself. I learned I was not alone in this world, maybe it was a small group but not alone. Since then I have attended numerous fundraising events, conferences and workshops learning and understanding much about the world of sarcoidosis. With FSR’s help I sought out second opinions from experienced doctors resulting in an improved treatment plan, which lead to improvement in my condition. The improvements lead me to expand my treatment and explore music therapy to improve my walking, balance and strength problems I had been suffering from due to lesions on my brain. Since starting this treatment I have discarded my walking cane, have made significant improvements in my walking speed, gait and balance. We are very fortunate to have this foundation and its dedicated professionals advocating on behalf of the sarcoidosis community. Please join us today with your support.

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$700
raised of $1,000 goal
 

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