I walked 181 steps towards my goal!


I walked 181 steps towards my goal!
I walked 2,516 steps towards my goal!
I walked 8,776 steps towards my goal!
I walked 4,635 steps towards my goal!
I walked 3,322 steps towards my goal!
I walked 2,772 steps towards my goal!
I walked 3,339 steps towards my goal!
I walked 2,507 steps towards my goal!
Holy Moly! Thank you so much for your donations! I truly appreciate the support. I've been advocating since I got diagnosed in 2014. It's been amazing to see the progress that has been happening in the medical research space for Sarcoidosis and other rare diseases. I had no idea my life would take me in all the directions it has, but it's interesting to me that something that was so incredibley destructive and disruptive, brought me such a feeling of purpose and intention. I wanted people to not have to go through with what I and so many others have gone through. IMO, we, as a society, have the need, means and capablilty to invest in medical research. We need to work collaboratively for the preservation and improvement for people living with disease and disability. I've learned a lot. Having the opportunity to work at some of the big umbrella nonprofit rare disease and undiagnoesd organizations, it's endlessly heartbreaking knowing we are all not able to get things done effectively and efficiently. Rant over. (for now) Thank you all for your support. I'm going to go get some steps in! (Purple Heart Emoji)
Thanks to all who have engaged, donated and reached out about my 2026 Steps for Sarcoidosis Awareness and Fundraising Campaign. I appreciate your support and encouragement throughout my journey. I updated my steps today and I'm grateful that I have been able to take as many steps as I have this month. There are good days and bad days, which is my normal. Some highlights have been being able to take a very long walk on the beach with 2 amazing lifelong friends, (despite blisters and flip flops which decided to take their ultimate flop and ended up in the the trash)! Some lowlights was having a root canal revision, very unpleasant and slowed me down considerably. My overall goal has been to increase my monthly average every month and I'm happy to say I'm doing okay on that one. I am a lot slower than I used to be, but I'm still moving forward?
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