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Welcome to Cassandra's Page

Cassandra Sullivan

Cassandra Sullivan

Thank you for visiting my page!

As you might know, the fight against sarcoidosis is a cause that is important to me.

Sarcoidosis is a rare, often chronic inflammatory disorder that causes the formation of granulomas, or clumps of inflammatory cells. This can occur in almost any organ in the body, most commonly affecting the lungs, lymph nodes, skin and eyes. While this disease affects as many as 200,000 Americans, there is currently no known cure and treatment options are limited and often ineffective.

KISS stands for Kick In to Stop Sarcoidosis, and that’s what you'll be doing by supporting my page. FSR is the leading nonprofit dedicated to finding a cure for this disease and improving care and treatment options for sarcoidosis patients. The funds all go directly to FSR and their programs for improving patient education, supporting patients and their caretakers, and of course, funding research to find better treatment options and one day, a cure.

In February 2006, one month after turning 40, my Dad received his diagnosis of Sarcoidosis after years of numerous incorrect diagnoses. When he passed in 2017, he had fought through every single time line he had been given; through multiple failed types of chemotherapy and infusions; to becoming wheelchair bound with a rod in his leg. He was always my hero with me being his little girl, but I will forever admire the strength and pure determination he had to fight Sarcoidosis to see some of the most important moments of my life.

For Sarcoidosis Awareness month this year, I am going all out. There will be purple on me every day, I am making posts and sharing others' posts, I even have the Zakim bridge in Boston being lit purple. Spreading awareness is definitely my goal, but FSR needs donations to help with research for the people who are and will be fighting this disease in the future. Please help me raise money to help FSR!

- Cassandra

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Team In Memory of Stephen Sullivan

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