Pete Friedmann's Walk for FSR
Kathy Roberts
Kathy Roberts
Dear Friends,
Please support my brother's fundraising for the rare, chronic disease that he has, Cardiac Sarcoidosis. I'm walking in the Philadelphia walk/fundraiser this Sunday at the same time as he walks in the Chicago-area walk/fundraiser. This is from Pete's page:
It’s been almost a year since I first disclosed that I have cardiac sarcoidosis. The good news is that it’s been a pretty good year – no major set-backs, and many more good days than bad days. I’ve got an outstanding health care team, and together we’re managing the disease.
The reality, though, is that my sarcoidosis is not going away, and it can develop in any organ at any time. I’ve been attending meetings of a patient support group, and this drives home how fortunate I am. Most of the other patients have had more difficult journeys than I.
Sarcoidosis is a rare, inflammatory disease. It can be treated, but there is no cure. There can be no cure without research, and there can be to research without funding. That’s why I went public last year, and it’s why I’m helping to raise funds again this year.
I am participating in a fundraising and awareness event called “Walk in the Park for Sarc” on April 27, 2019 at the Herrick Lake Forest Preserve in Wheaton, IL. Anyone is welcome to attend. My main focus, though, is funding for research through the Foundation for Sarcoidosis Research (FSR).
Yes, we all receive more solicitations like this than we possibly can honor. So, please don’t feel pressured. However, if you’re at all inclined to donate, I invite you to visit my fundraising page at https://stopsarcoidosis.rallybound.org/WalkintheParkforSarc2019/Petes-FSR-Walk.
Thank you for your consideration!
Pete (and Kathy)
Please support my brother's fundraising for the rare, chronic disease that he has, Cardiac Sarcoidosis. I'm walking in the Philadelphia walk/fundraiser this Sunday at the same time as he walks in the Chicago-area walk/fundraiser. This is from Pete's page:
It’s been almost a year since I first disclosed that I have cardiac sarcoidosis. The good news is that it’s been a pretty good year – no major set-backs, and many more good days than bad days. I’ve got an outstanding health care team, and together we’re managing the disease.
The reality, though, is that my sarcoidosis is not going away, and it can develop in any organ at any time. I’ve been attending meetings of a patient support group, and this drives home how fortunate I am. Most of the other patients have had more difficult journeys than I.
Sarcoidosis is a rare, inflammatory disease. It can be treated, but there is no cure. There can be no cure without research, and there can be to research without funding. That’s why I went public last year, and it’s why I’m helping to raise funds again this year.
I am participating in a fundraising and awareness event called “Walk in the Park for Sarc” on April 27, 2019 at the Herrick Lake Forest Preserve in Wheaton, IL. Anyone is welcome to attend. My main focus, though, is funding for research through the Foundation for Sarcoidosis Research (FSR).
Yes, we all receive more solicitations like this than we possibly can honor. So, please don’t feel pressured. However, if you’re at all inclined to donate, I invite you to visit my fundraising page at https://stopsarcoidosis.rallybound.org/WalkintheParkforSarc2019/Petes-FSR-Walk.
Thank you for your consideration!
Pete (and Kathy)
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