Thank you for visiting my page!
As you might know, the fight against sarcoidosis is a cause that is important to me. A little about my story, I was diagnosed with Cardiac Sarcoidosis in February 2019, just a few months after my 30th birthday. Nearly a year after my early symptoms were misdiagnosed, I was hospitalized due to late stage AV block and had an ICD implantation. It was (and continues to be) a very challenging time.
Sarcoidosis is a rare, often chronic inflammatory disorder that causes the formation of granulomas, or clumps of inflammatory cells. This can occur in almost any organ in the body, most commonly affecting the lungs, lymph nodes, skin and eyes (in my case, the heart). There is currently no known cure and treatment options are limited and often ineffective.
I have chosen to support the Foundation for Sarcoidosis Research (FSR) by fundraising for Team KISS!
KISS stands for Kick In to Stop Sarcoidosis, and that’s what you'll be doing by supporting my page. FSR is the leading nonprofit dedicated to finding a cure for this disease and improving care and treatment options for sarcoidosis patients. The funds all go directly to FSR and their programs for improving patient education, supporting patients and their caretakers, and of course, funding research to find better treatment options and one day, a cure.
Please consider helping me reach my goal. Together, we can Stop Sarcoidosis!